Welcome to the Bobby Engram Foundation
Special thanks to Burning Sky Media for providing this great video |
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Click here for photos from the game |
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The Engram Family
(L to R) Trey, Deanna, Bobbi, Bobby, Dean
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Photo by: Mike Urban,
Seattle Post-Intelligencer
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When
Bobby Engram's daughter Bobbi approached and told him she wanted to talk
about her disease so she could help families, he listened. Bobbi has sickle
cell anemia. When she was a baby, Bobby and his wife Deanna struggled to
find information about the disease that caused pain to their child. As
she grew, and the pain episodes came and went, the family explored options
to help their little girl deal with her pain. Now they want to help other
families in their ongoing campaign.
Bobby is a celebrity who is speaking openly about the care of his family and the efforts it takes to work with hospitals, clinics and other families to get the word out about this disease. Sickle cell does not get better. It is something parents and children have to find out how to manage.
The Bobby Engram Foundation has been founded to help others in pain. With your help, the Foundation will bring awareness and knowledge to those who support our efforts. We are pleased you have chosen to visit the site.
Sickle Cell Disease World Day - June 19, 2009
The Sickle Cell Disease Association of America (SCDAA) is proud to announce the observance of the First Annual Sickle Cell Disease World Day. This day of observance is the product of the December 18, 2008, United Nations Resolution that called for the recognition of sickle cell anemia as a public health problem and “one of the world’s foremost genetic diseases.” The resolution calls for member States and the organizations of the United Nations system to raise awareness of sickle-cell anemia on June 19th of each year at the national and international level.
SCDAA would like to acknowledge the efforts of the Sickle Cell Disease International Organization (SCDIO) in bringing about the passage of this United Nations Resolution and in establishing this annual international day of awareness.
The public celebration of this resolution will be held June 19th at the United Nations Headquarters in New York in partnership with the World Health Organization (WHO), the United Nations Children’s Emergency Fund (UNICEF), and the United Nations.
The resolution has seven major components;
- Recognizes that sickle cell anemia is a major health problem
- Underlines the need to raise public awareness about sickle cell anemia and to eliminate harmful prejudices associated with the disease
- Urges Member states and organizations of the United Nations to raise
awareness of sickle cell anemia on the 19th of June each year at the
national and international levels
- Encourages member states as well at the United Nations member agencies,
funds and programs, international institutions and development partners
to support health systems and primary health care delivery, including
efforts to improve the management of sickle cell anemia
- Invites member states, international organizations and civil society
to support the efforts being made to combat sickle cell anemia, including
as part of health-system strengthening efforts in the various development
programs, and to encourage basic and applied research on the disease
- Urges the Member states in which sickle cell anemia is a public health
problem to establish national programs and specialized centers for treatment
of sickle cell anemia and facilitate access to treatment
- Requests the Secretary-General to bring the present resolution to the attention of all Member states and organizations of the United Nations system.
Staff and members of the board of directors of SCDAA will participate in the activities.
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White House Deputy Press Secretary,
Scott Stanzel presents Seattle Seahawks wide-receiver Bobby Engram
with the U.S. President's Volunteer Service Award. |
Bobby Engram Honored with the President's Volunteer Service Award
USA Freedom Corps, President Bush's initiative to promote volunteer service among Americans, today announced that National Football League (NFL) players will be honored with the President's Volunteer Service Award for their remarkable volunteer service, particularly by promoting the importance of fitness and health among youth through the NFL’s PLAY 60 campaign. Members of the President's Council on Service and Civic Participation and the President's Council on Physical Fitness and Sports, as well as senior White House staff, will present awards to players from the 12 home teams on Sunday, November 30, and the remaining awards will be presented to players from the remainder of the 32 teams throughout the season.
“These players are not only leaders on the football field, they are also leaders within the communities they serve,” said USA Freedom Corps Acting Director Alison Young. “Through the President’s Volunteer Service Award, we honor and thank these men for their service to our nation’s young people and for representing the best of the American volunteer spirit.”
Following the attacks of 9/11, President George W. Bush issued a national Call to Service and launched USA Freedom Corps to connect Americans with more opportunities to serve their country and to foster a culture of service, citizenship and responsibility. He created the President’s Volunteer Service Award to recognize the countless acts of service and sacrifice shown by Americans of all ages. [via]
For more information on the President’s Volunteer Service Award, visit: http://www.presidentialserviceawards.gov.
Last updated: 07/12/2009